Rare Disease Day 2021
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The observance began under the auspices of the European Organisation for Rare Diseases (which is now the National Organization for Rare Disorders) established in 2008 due to what was perceived as numerous rare diseases as well as those which are typically overlooked by the mainstream medical industrial complex.
The organization says that treatment modalities for rare cases is grossly inadequate as are those social and medical support networks.
The day is primarily a vehicle for promotion of support mechanisms, treatment modalities, and research on behalf of those suffering rare diseases. The National Organization for Rare Disorders claims some 200 different medical problems currently populate their list.
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